Imagine
yourself forced to live in total darkness. Not the normal curtains-pulled sort
of night-time darkness, but total, impenetrable blackness, so dark that you
must feel your way around. That’s what happened to Anna Lindsey (a pseudonym) when she developed a severe sensitivity
to all forms of light, natural and artificial. Exposure to light, however small
or dim, caused excruciating pain, as if her skin were being burned by a
blowtorch.
Girl in the Dark is her account of how
life changed. It’s not a misery memoir. Although Lindsey admits she gets
depressed – and has even, on occasions, thought of suicide – generally she
remains upbeat, and her book is both uplifting and life affirming. She is no
longer angry about her condition, and she has stopped seeking reasons or
answers. She explains: “‘Why me?’ is the question of an idiot. The sensible
person says simply, ‘Why not?’”
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Girl In The Dark: Anna Lindsey's beautiful, moving
account of living with a severe sensitivity to light. |
As
her photosensitivity worsened, her world contracted to a single blacked-out
room in the house of her boyfriend (now her husband). “It is extraordinarily
difficult to black out a room,” she tells us.
“First I
line the curtains with blackout material, a heavy, plasticky fabric, strange
flesh-like magnolia in colour, not actually black. But the light slips in
easily, up and over the gap between the rail and the wall, and at the bottom
through the loops made by the hanging folds.
“So I add a
blackout roller blind, inside the window alcove. But the light creeps in around
the sides, and shimmies through the slit at the top.
“So I tackle
the panes themselves. I cut sheets of cooking foil, press them against the
glass, tape them to the window frames. But the foil wrinkles and rips, refuses
to lie flat. Gaps persist around the edges, pinpricks and tears across the
middle.”
Eventually,
with curtains, blind, layer upon layer of foil and tape, and a rolled towel
along the crack at the bottom of the door, she has blackness. But even that is
not enough. To protect her skin from light rays that cannot be seen, but can still
be felt, she must cover herself from head to toe in an assortment of garments,
discovering through trial and error that some materials and styles are a more
effective barrier than others.
The
room is small, but when she is first in the dark she often gets lost, for ‘the
darkness can cause disorientation that is total, and terrifying’. She develops strategies
to cope and listens to audio books and Radio 4 – plays, readings, debates,
current affairs but, to start with at any rate, not music. At the beginning music
‘unhinges’ her, reminds her of what she has lost.
And
she plays word games in her mind, sometimes on her own, sometimes with visitors.
Most tricky is the word grid, five squares by five, forming five letter words
down and across - difficult enough when you have pen, paper and light, but well
nigh impossible without them.
During
the 10-year period covered by the book Lindsey has periods of remission when
she is able to emerge from her room and venture to other heavily veiled parts
of the house. In semi-darkness she cooks and reads, and is even able to creep outside
in the dark. There are some memorable moments, like a night-time walk in the
garden in the falling rain. She tells us:
“From the
crown of my hat to the toes of my boots, an indescribable thrill runs through
me. I stand poised at the edge of the lawn, and my starved senses open to this
delicious, half-forgotten joy...
I let myself
be soaked. Like a young plant, I let myself be watered well in. It is as though
I am being kissed by the world, welcomed back to life.”
And
on another occasion Mottisfont, a National Trust property near her home,
arranges an extra-late midsummer opening so she and her husband can visit the
walled rose garden. As they go through the door the smell ‘wallops’ them in the
face.
“It is as
though we have passed from air to some new substance, formed of a thousand
interlocking scents that twist languorously about each other, like invisible
smoke.”
It’s
a magical interlude and as they leave she says:
“…on the
inside of my eyelids I carry with me the imprint of glorious flowers, and in my
nostrils, the ghosts of their perfume.”
It’s
a shadowy sort of existence, and timings become all important during her good
spells: her life is ruled by sunsets and sunrises. A photographic light meter
helps track the amount of light she can tolerate. For example, f1 is almost
dark; f4 is more or less when street lights come on; f8 is the sun just above
horizon on a clear day. Light levels at noon are f200 plus, which she cannot
cope with. She is, she says, ‘nibbling at the edges of the day’.
Sadly,
these periods of remission are all too brief, and she is always forced to
retreat back to the sanctuary of her dark room. She looks back on them,
grateful for the respite, but never lets herself hope for more, because she is
unsure they will ever be repeated.
Girl
in the Dark is very moving, and very lyrical. Lindsey writes with great warmth
and lucidity, and is able to consider her consider her situation and analyse
her feelings in way which reveals more general truths about humanity. It made me
laugh and cry - moments of high drama and intense sadness and despair are juxtaposed
alongside interludes full of joy, and almost farcical episodes, for Lindsey retains her sense of humour,
and is well aware how ludicrous her life can seem.
Reading
it took me on an emotional journey which left me exhausted, and I cannot begin
to envisage what it must be like for Lindsey to live like this. Yet she seems
to have achieved a degree of serenity, a feeling that what will be will be, and
she is thankful for small pleasures in life. I was left with the feeling that
we should all put a higher value on things we take for granted, like the feel
of rain, the smell of a flower, the warmth of the sun – and having enough light
to sit and read a book.